Disclaimer: This is my opinion and based on my experience after 12 years of researching about autism and being officially diagnosed with Asperger’s Syndrome. It is not meant to replace the DSM-V Autism Spectrum Disorder definition nor is this list meant to serve as an official diagnostic tool. Hundreds of women have used this list in conjunction with the DSM-IV or DSM-V and a professional mental health professional’s guidance. It is also based on 4.5 years of communicating almost daily with those that are diagnosed with autism and some that believe themselves to be on the spectrum. It is not all inclusive. Some will fit into categories and not be autistic/Asperian. This is meant as a springboard for discussion and more awareness into the female experience with autism.

* Highly intelligent does not relate to IQ levels. Often Aspies are dyslexic and have dysgraphia and other learning disabilities but can be highly intelligent about particular subject matters, out-of-the-box thinking, and verbal fluency capacities.

Females with Asperger’s Syndrome Unofficial Checklist

Sam’s book Everyday Asperges is now available here and in multiple countries on Amazon. Strong reviews!

This is an unofficial checklist created by an adult female with Asperger’s Syndrome (AS) who has a son with Asperger’s Syndrome. Samantha Craft has a Masters Degree in Education. Samantha Craft does not hold a doctorate in Psychiatry or Psychology. She has a life-credential as a result of being a female with Asperger’s Syndrome and being a parent of a child with Asperger’s Syndrome. She has created this list in an effort to assist health professionals in recognizing Asperger’s Syndrome in females—for in-depth information regarding females with AS refer to Craft’s upcoming book Everyday Aspergers. Ten Traits of Aspergers can be found here.

Suggested Use: Check off all areas that strongly apply to the person. If each area has 75%-80% of the statements checked, or more, then you may want to consider that the female may have Asperger’s Syndrome.

When determining an AS diagnosis (or Autism Spectrum diagnosis) reviewing an individual’s childhood, adolescence, young adulthood, and present day is advisable. This particularly applies to communication challenges; many females with AS teach themselves the communication rules to the point of extreme. A primary identifier might be they are still teaching themselves social and communication rules; in other words they are still rehearsing. (Section A consideration/prolific artist in place of writer and/or both.)

Section A: Deep Thinkers

A deep thinker A prolific writer drawn to poetry *Highly intelligent Sees things at multiple levels, including her own thinking processes Analyzes existence, the meaning of life, and everything, continually Serious and matter-of-fact in nature Doesn’t take things for granted Doesn’t simplify Everything is complex Often gets lost in own thoughts and “checks out” (blank stare)

Section B: Innocent

Naïve Honest Experiences trouble with lying Finds it difficult to understand manipulation and disloyalty Finds it difficult to understand vindictive behavior and retaliation Easily fooled and conned Feelings of confusion and being overwhelmed Feelings of being misplaced and/or from another planet Feelings of isolation Abused or taken advantage of as a child but didn’t think to tell anyone

Section C: Escape and Friendship

Survives overwhelming emotions and senses by escaping in thought or action Escapes regularly through fixations, obsessions, and over-interest in subjects Escapes routinely through imagination, fantasy, and daydreaming Escapes through mental processing Escapes through the rhythm of words Philosophizes, continually Had imaginary friends in youth Imitates people on television or in movies Treated friends as “pawns” in youth, e.g., friends were “students” “consumers” “members” Makes friends with older or younger females more so than friends her age (often in young adulthood) Imitates friends or peers in style, dress, attitude, interests, and manner (sometimes speech) Obsessively collects and organizes objects Mastered imitation Escapes by playing the same music over and over Escapes through a relationship (imagined or real) Numbers bring ease (could be numbers associated with patterns, calculations, lists, time and/or personification) Escapes through counting, categorizing, organizing, rearranging Escapes into other rooms at parties Cannot relax or rest without many thoughts Everything has a purpose

Section D: Comorbid Attributes

OCD (Obsessive Compulsive Disorder) Sensory Issues (sight, sound, texture, smells, taste) (might have synesthesia) Generalized Anxiety Sense of pending danger or doom Feelings of polar extremes (depressed/over-joyed; inconsiderate/over-sensitive) Poor muscle tone, double-jointed, and/or lack in coordination (may have Ehlers Danlos Syndrome and/or Hypotonia and/or POTS syndrome) Eating disorders, food obsessions, and/or worry about what is eaten Irritable bowel and/or intestinal issues Chronic fatigue and/or immune challenges Misdiagnosed or diagnosed with a mental illness Experiences multiple physical symptoms, perhaps labeled “hypochondriac” Questions place in the world Often drops small objects Wonders who she is and what is expected of her Searches for right and wrong Since puberty has had bouts of depression (may have PMDD) Flicks/rubs fingernails, picks scalp/skin, flaps hands, rubs hands together, tucks hands under or between legs, keeps closed fists, paces in circles, and/or clears throat often

Section E: Social Interaction

Friends have ended friendship suddenly (without female with AS understanding why) and/or difficult time making friends Tendency to overshare Spills intimate details to strangers Raised hand too much in class or didn’t participate in class Little impulse control with speaking when younger Monopolizes conversation at times Brings subject back to self Comes across at times as narcissistic and controlling (is not narcissistic) Shares in order to reach out Often sounds eager and over-zealous or apathetic and disinterested Holds a lot of thoughts, ideas, and feelings inside Feels as if she is attempting to communicate “correctly” Obsesses about the potentiality of a relationship with someone, particularly a love interest or feasible new friendship Confused by the rules of accurate eye contact, tone of voice, proximity of body, body stance, and posture in conversation Conversation are often exhausting Questions the actions and behaviors of self and others, continually Feels as if missing a conversation “gene” or thought-filter Trained self in social interactions through readings and studying of other people Visualizes and practices how she will act around others Practices/rehearses in mind what she will say to another before entering the room Difficulty filtering out background noise when talking to others Has a continuous dialogue in mind that tells her what to say and how to act when in a social situation Sense of humor sometimes seems quirky, odd, inappropriate, or different from others As a child it was hard to know when it was her turn to talk Finds norms of conversation confusing Finds unwritten and unspoken rules difficult to grasp, remember, and apply

Section F: Finds Refuge when Alone

Feels extreme relief when she doesn’t have to go anywhere, talk to anyone, answer calls, or leave the house but at the same time will often harbor guilt for “hibernating” and not doing “what everyone else is doing” One visitor at the home may be perceived as a threat (this can even be a familiar family member) Knowing logically a house visitor is not a threat, doesn’t relieve the anxiety Feelings of dread about upcoming events and appointments on the calendar Knowing she has to leave the house causes anxiety from the moment she wakes up All the steps involved in leaving the house are overwhelming and exhausting to think about She prepares herself mentally for outings, excursions, meetings, and appointments, often days before a scheduled event OCD tendencies when it comes to concepts of time, being on time, tracking time, recording time, and managing time (could be carried over to money, as well) Questions next steps and movements, continually Sometimes feels as if she is on stage being watched and/or a sense of always having to act out the “right” steps, even when she is home alone Telling self the “right” words and/or positive self-talk (CBT) doesn’t typically alleviate anxiety. CBT may cause increased feelings of inadequacy. Knowing she is staying home all day brings great peace of mind Requires a large amount of down time or alone time Feels guilty after spending a lot of time on a special interest Uncomfortable in public locker rooms, bathrooms, and/or dressing rooms Dislikes being in a crowded mall, crowded gym, and/or crowded theater

Section G: Sensitive

Sensitive to sounds, textures, temperature, and/or smells when trying to sleep Adjusts bedclothes, bedding, and/or environment in an attempt to find comfort Dreams are anxiety-ridden, vivid, complex, and/or precognitive in nature Highly intuitive to others’ feelings Highly empathetic, sometimes to the point of confusion Takes criticism to heart Longs to be seen, heard, and understood Questions if she is a “normal” person Highly susceptible to outsiders’ viewpoints and opinions At times adapts her view of life or actions based on others’ opinions or words Recognizes own limitations in many areas daily, if not hourly Becomes hurt when others question or doubt her work Views many things as an extension of self Fears others opinions, criticism, and judgment Dislikes words and events that hurt animals and people Collects or rescues animals (often in childhood) Huge compassion for suffering (sometimes for inanimate objects/personification) Sensitive to substances (environmental toxins, foods, alcohol, medication, hormones, etc.) Tries to help, offers unsolicited advice, or formalizes plans of action Questions life purpose and how to be a “better” person Seeks to understand abilities, skills, and/or gifts

Section H: Sense of Self

Feels trapped between wanting to be herself and wanting to fit in Imitates others without realizing it Suppresses true wishes (often in young adulthood) Exhibits codependent behaviors (often in young adulthood) Adapts self in order to avoid ridicule Rejects social norms and/or questions social norms Feelings of extreme isolation Feeling good about self takes a lot of effort and work Switches preferences based on environment and other people Switches behavior based on environment and other people Didn’t care about her hygiene, clothes, and appearance before teenage years and/or before someone else pointed these out to her “Freaks out” but doesn’t know why until later Young sounding voice Trouble recognizing what she looks like and/or has occurrences of slight prosopagnosia (difficulty recognizing or remembering faces) Feels significantly younger on the inside than on the outside (perpetually twelve)

Section I: Confusion

Had a hard time learning that others are not always honest Feelings seem confusing, illogical, and unpredictable (self’s and others’) Confuses appointment times, numbers, and/or dates Expects that by acting a certain way certain results can be achieved, but realizes in dealing with emotions, those results don’t always manifest Spoke frankly and literally in youth Jokes go over the head Confused when others ostracize, shun, belittle, trick, and betray Trouble identifying feelings unless they are extreme Trouble with emotions of hate and dislike Feels sorry for someone who has persecuted or hurt her Personal feelings of anger, outrage, deep love, fear, giddiness, and anticipation seem to be easier to identify than emotions of joy, satisfaction, calmness, and serenity Difficulty recognizing how extreme emotions (outrage, deep love) will affect her and challenges transferring what has been learned about emotions from one situation to the next Situations and conversations sometimes perceived as black or white The middle spectrum of outcomes, events, and emotions is sometimes overlooked or misunderstood (all or nothing mentality) A small fight might signal the end of a relationship or collapse of world A small compliment might boost her into a state of bliss

Section J: Words, Numbers, and Patterns

Likes to know word origins and/or origin of historical facts/root cause and foundation Confused when there is more than one meaning (or spelling) to a word High interest in songs and song lyrics Notices patterns frequently Remembers things in visual pictures Remembers exact details about someone’s life Has a remarkable memory for certain details Writes or creates to relieve anxiety Has certain “feelings” or emotions towards words and/or numbers Words and/or numbers bring a sense of comfort and peace, akin to a friendship

(Optional) Executive Functioning & Motor Skills This area isn’t always as evident as other areas

Simple tasks can cause extreme hardship Learning to drive a car or rounding the corner in a hallway can be troublesome New places offer their own set of challenges Anything that requires a reasonable amount of steps, dexterity, or know-how can rouse a sense of panic The thought of repairing, fixing, or locating something can cause anxiety Mundane tasks are avoided Cleaning self and home may seem insurmountable Many questions come to mind when setting about to do a task Might leave the house with mismatched socks, shirt buttoned incorrectly, and/or have dyslexia and/or dysgraphia A trip to the grocery store can be overwhelming Trouble copying dance steps, aerobic moves, or direction in a sports gym class Has a hard time finding certain objects in the house but remembers with exact clarity where other objects are; not being able to locate something or thinking about locating something can cause feelings of intense anxiety (object permanence challenges) (even with something as simple as opening an envelope)

This unofficial checklist can be copied for therapists, counselors, psychiatrists, psychologists, professors, teachers, and relatives, if Samantha Craft’s name and contact information remain on the print out. This list was created in 2012 and updated in May 2016.

Sam’s best selling book

Author’s Note: This post was originally composed when Asperger’s Syndrome was a stand-alone diagnosis. At that time, not much was written or discussed about females on the autism spectrum, particularly not the rules of semantics to utilize when referring to other autistic women. In the four years since my online writings began, much to do about semantics in relationship to Autism Spectrum Disorders has emerged. Even the word “disorder” is a trigger word for some, myself included. Today, I prefer to write “I am autistic” or “I am Aspie,” when referring to myself, instead of “a person with autism/Aspergers.” (People-first versus condition/diagnosis-first) Primarily, because I don’t have Aspergers—rather I am Aspie. Aspergers is innately who I am as an individual and not some tagline—like a disease.With that said, while I am sensitive to the ongoing terminology debate and the growing trend (and need) to move beyond identifying one’s self with a “disorder,” in order to keep the authenticity and voice of the original works, including accurately reflecting how I experienced life and trends in the societal and psychological fields at the time, I chose to not make any specific broad-based terminology alterations in this post.

Samantha Craft (@aspergersgirls) compiled this page. She has corresponded with thousands of individuals touched by autism in their lives. Sam is the author of Everyday Aspergers, a revealing memoir, ten years in the making, about the everyday life of an autistic woman. More information can be found atSpectrum Suite LLC, myspectrumsuite.com

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